Screening for Dementia among Adults with Intellectual Disability: Outcomes from a Pilot Study
Abstract
Introduction
Screening for dementia among individuals with ID is important to identify individuals in need of care and support. The objective of this pilot study was to identify obstacles associated with screening and assessment of dementia among older adults with ID in a crisis-prone population.
Method
The Early Detection Screen for Dementia (EDSD) was administered to eligible enrollees ages 50 years and older within the START (Systemic, Therapeutic, Assessment, Resources, and Treatment) program. Focus groups were carried out to understand the barriers to screening and diagnosis of dementia.
Results
Of the 95 eligible enrollees, 63 participants had dementia screening tools completed. Obstacles identified through focus groups included difficulty differentiating changes from baseline function, competing priorities in this crisis-prone population, lack of access to providers, and an unclear understanding of the benefit or purpose of screening among some caregivers. START coordinators noted that the EDSD provided a helpful way to collect information and document changes in the enrollee’s functioning.
Conclusions
The EDSD may be helpful for capturing potential dementia-associated changes overtime in crisis-prone adults with ID, though obstacles remain to the access of further evaluation for dementia.
Publication Date
8-23-2021
Journal Title
Journal of Mental Health Research in Intellectual Disabilities
Publisher
Taylor & Francis
Digital Object Identifier (DOI)
Document Type
Article
Recommended Citation
Holingue, Calliope; Wise, Elizabeth; Caoili, Andrea; and Klein, Ann E., "Screening for Dementia among Adults with Intellectual Disability: Outcomes from a Pilot Study" (2021). Journal of Mental Health Research in Intellectual Disabilities. 203.
https://scholars.unh.edu/iod/203