Self-reported health of people with intellectual disability
Self-reported health is an important outcome in the evaluation of health care but is largely ignored in favor of proxy-based reporting for people with an intellectual disability. This study briefly reviews the role of self-report in health assessment of people with intellectual disability and the challenges and recommendations that have emerged from the considerable body of research on interviewing and self-report. Limitations in current recommendations are addressed from the perspective of the cognition of self-report. The review describes conceptual directions for the reconciliation of the two contradictory themes in the treatment of self-report: the centrality given to personal perceptions and choices and the methodological concerns over the meaningfulness and validity of the self-reporting process.
Intellectual and Developmental Disabilities
The American Association on Intellectual and Developmental Disabilities
Digital Object Identifier (DOI)
Fujiura, G. & the RRTC Expert Panel on Health Measurement (E. Andresen, B. Cardinal, C. Drum, T. Hall, W. Horner-Johnson, G. Krahn, M. Nosek, Jana Peterson-Besse, & R. Suzuki) (2012). Self-reported health of people with intellectual disability. Intellectual and Developmental Disabilities, 50(4), 352-369.
Copyright The American Association on Intellectual and Developmental Disabilities