Institute on Disability
 

Title

Self-reported health of people with intellectual disability

Abstract

Self-reported health is an important outcome in the evaluation of health care but is largely ignored in favor of proxy-based reporting for people with an intellectual disability. This study briefly reviews the role of self-report in health assessment of people with intellectual disability and the challenges and recommendations that have emerged from the considerable body of research on interviewing and self-report. Limitations in current recommendations are addressed from the perspective of the cognition of self-report. The review describes conceptual directions for the reconciliation of the two contradictory themes in the treatment of self-report: the centrality given to personal perceptions and choices and the methodological concerns over the meaningfulness and validity of the self-reporting process.

Publication Date

8-1-2012

Journal Title

Intellectual and Developmental Disabilities

Publisher

The American Association on Intellectual and Developmental Disabilities

Digital Object Identifier (DOI)

10.1352/1934-9556-50.4.352

Document Type

Article

Rights

Copyright The American Association on Intellectual and Developmental Disabilities